Urgent Prayer Request

Throughout my blog, I've written about my sister, ZZ, and have mentioned her daughter, Presley, who will be four in September.

If you haven't heard me talk about it, Presley has some behavioral issues. We've laughed about them for years, but recently it's gone far beyond funny. It's safe to say that she's out of control. ZZ and Brian became worried when Presley started to exhibit even more weird behavior: In the middle of a sentence or action, she'd stop everything she was doing and just stare straight ahead. She would be totally unresponsive for 30 or so seconds, and then resume what she was doing as if nothing had happened.

Our pediatrician, who thankfully is a personal friend to both ZZ and me, took no chances and immediately ordered CT scans and blood work on Presley. Both were done today.

As of this evening, Presley has been diagnosed with Tuberous Sclerosis, a condition in which calcium deposits form on major organs like the brain, eyes, kidneys, skin and heart. Presley has tested positive for deposits on her brain and more tests will be run to look for other areas.

Many, many people live perfectly normal lives with TSC, while others are profoundly affected. There is no way to predict how a person will be affected and there is no cure or treatment for the disease. Presley's behavior is positively linked to TSC.

So I'm asking for prayers for Presley and for her entire family - for healing, for peace and for acceptance. Presley was a gift from God four years ago when Brian and ZZ were desperate for another child. She was created by God for her parents and they never let a day go by without thanking the Lord that she became theirs. If you remember her adoption story, it almost didn't happen.

Please pray, too, for the doctors who will treat Presley. Hope is in their work.

Thank you.

Erin

Tuberous Sclerosis Alliance